Non-enrolling CHSS Studies

These studies have been closed for new enrollment but we continue to follow these patients, except for Coarctation cohort (see Appendices in current study protocol).

Note: Most documents are in Adobe Acrobat format. To Download Acrobat Reader for free please click here
If you would like a Microsoft Word version of any of the following documents, please email Kathryn Coulter with your request.

Study Protocol

Study Protocol (with track changes) if needed for IRB/REB Submissions:

Protocol Amendment Summary (if needed for IRB/REB submissions):

Patient Demographics

Consent & Assent and Cover Letters (for reference)

For Parent/Guardian:
For Patient/Adult:

Welcome Package & Related Documents (Generic)

Annual Follow Up Documents (Generic)

Linking Logs (Generic)

Approval Letter